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"The artificial heart: a case study of social and ethical issues posed by advanced medical technology" Collection

 Collection
Identifier: OH 166

Abstract

Interviews, interview summaries, testimonies, audiocassettes, field notes, and background articles created and collected by Judith Swazey and Renee Fox as part of their study of the Jarvik-7 artificial heart's development and clinical use.

Dates

  • 1982-1987

Extent

1.7 Linear Feet (4 boxes)

Creator

Abstract

Interviews, interview summaries, testimonies, audiocassettes, field notes, and background articles created and collected by Judith Swazey and Renee Fox as part of their study of the Jarvik-7 artificial heart's development and clinical use.

Physical Location

Materials stored onsite. History of Medicine Division. National Library of Medicine

Access Restrictions

No restrictions on access.

Copyright and Re-use Information

Donor's copyrights were transferred to the public domain. Archival collections often contain mixed copyrights; while NLM is the owner of the physical items, permission to examine collection materials is not an authorization to publish. These materials are made available for use in research, teaching, and private study. It is the user's responsibility to research and understand any applicable copyright and re-publication rights not allowed by fair use. NLM does not grant permissions to publish.

Privacy Information

Archives and manuscript collections may contain materials with sensitive or confidential information that is protected under federal or state right to privacy laws and regulations. Researchers are advised that the disclosure of certain information pertaining to identifiable living individuals represented in any collection without the consent of those individuals may have legal ramifications for which the National Library of Medicine assumes no responsibility.

Biographical/Historical Note

Judith P. Swazey, Ph.D. was president of the Acadia Institute. Her research, writing, and teaching focused on the history of science and medicine and the social, ethical, legal, and policy aspects of contemporary medical research and practice. She has been an adjunct professor at Boston University Schools of Public Health and medicine and is a member of the Institute of Medicine.

The Acadia Institute, located in Bar Harbor, Maine, was founded in 1984 as a center for the study of medicine, science, and society. It advertised itself as an independent, nonprofit organization working at local and national levels on issues concerning the nature and interrelations of medicine, science, and society to help professionals and laypersons: better understand the nature of biomedical research and health care; examine issues and frame questions needed about the increasingly complex relationships among medicine, science, and society; deal more wisely and effectively with the choices and decisions about the content, conduct, and aims of research and health care. The Institute's work involved two broad interdisciplinary program areas: social, ethical, and policy dimensions of biomedical research and health care; the modern development of the biomedical sciences and health care from the perspectives of social and intellectual history. The Institute conducted grant-funded research projects; consulted for public and private agencies and organizations in areas such as health care needs and services, provider relationships, ethics, law, policy development, and program evaluation; developed conferences, workshops, seminars, and other educational programs. [from Institute brochure]

Renee C. Fox, Ph.D., was Annenberg Professor of the Social Sciences and Professor, departments of Medicine, Psychiatry, and Nursing, University of Pennsylvania. She was a member of the American Academy of Arts and Sciences, the American Philosophical Society, and the Institute of Medicine. Her major teaching and research interests included sociology of medicine, medical research, medical education, and medical ethics.

Collection Summary

Interviews, interview summaries, correspondence, testimonies, audiocassettes, field notes, newsclippings, and background articles created and collected by Judith Swazey and Renee Fox as part of their study of the Jarvik-7 artificial heart's development and clinical use (supported by NSF grant no. BBS 8418994). Contents include interviews with Barney Clark's nurses and other Humana Hospital nurses, William DeVries, University of Utah laboratory development scientists, FDA and IRB hearing testimonies, and news casts.

Provenance

Gift, Judith Swazey, 11/4/1992, Acc. #767.

General

Processed by
John P. Rees
Processing Completed
January 2015
Encoded by
John P.Rees

Language of Materials

Collection materials primarily in English

Title
Finding Aid to the "The artificial heart: a case study of social and ethical issues posed by advanced medical technology" Collection, 1982-1987
Status
Unverified Partial Draft
Author
John P. Rees
Date
January 2015
Language of description
English
Script of description
Code for undetermined script
Language of description note
Finding aid is written in English
Edition statement
1.0

Collecting Area Details

Part of the Archives and Modern Manuscripts Collection Collecting Area

Contact:
8600 Rockville Pike
Bldg 38/1E-21, MSC 3819
Bethesda MD 20894 US
(301) 402-8878