Acadia Institute Ethnographic and Medical Sociology Research Collection
Abstract
Interview transcripts and memos, field notes, correspondence, subject files, reprints, and newspaper clippings documenting multiple ethnographical medical sociology research projects conducted by Judith Swazey and Renée Fox, working independently and jointly under the auspices of the Acadia Institute which primarily focused on social, ethical, and policy issues in biomedical research and healthcare.
Dates
- Creation: 1966-1987
Extent
13.95 Linear Feet (12 boxes)
Creator
- Acadia Institute (Organization)
Physical Location
Materials stored onsite. History of Medicine Division. National Library of Medicine
Language of Materials
Collection materials primarily in English
Access Restrictions
Collection contains restricted material. Portions of the collection are restricted according to HMD's Access to Health Information of Individuals policy. Contact the Reference Staff for information regarding access. For access to the policy and application form, please visit https://www.nlm.nih.gov/hmd/manuscripts/phi.pdf.
Copyright and Re-use Information
Donor's copyrights were transferred to the public domain. Archival collections often contain mixed copyrights; while NLM is the owner of the physical items, permission to examine collection materials is not an authorization to publish. These materials are made available for use in research, teaching, and private study. It is the user's responsibility to research and understand any applicable copyright and re-publication rights not allowed by fair use. NLM does not grant permissions to publish.
Privacy Information
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Biographical Note
The Acadia Institute, founded by Judith Swazey in Bar Harbor, Maine in 1984, was an independent, non-profit research and advocacy organization focused on the intersection between medicine, science, and society and policy issues in biomedical research and healthcare. The Acadia Institute conducted grant-funded research projects on a variety of subjects including the artificial heart and science graduate education. The Institute also provided consulting services in areas such as health care services, provider relationships, policy development, and program evaluation. Lastly, the Institute developed educational programs and conferences on medical sociology and bioethics for both professional and lay audiences.
Judith P. Swazey is a historian of science and medicine and of the social, ethical, legal, and policy aspects of contemporary medical research and practice. She earned her Ph.D. in history at Harvard University and went on to teach at Boston University in the 1970s. Swazey later served as the Executive Director of Medicine in the Public Interest, Inc. and briefly served as president of the College of the Atlantic. She founded the Acadia Institute, a non-profit research and advocacy organization based in Maine. Among other professional activities, Swazey was an Adjunct Professor at Boston University's Schools of Medicine and Public Health and is an elected member of the National Academy of Medicine.
Renée C. Fox is a sociologist whose research focuses on medicine, medical research, and medical ethics. Fox earned her Ph.D. in Sociology from Radcliffe College in 1954. She was a member of the Columbia University Bureau of Applied Social Research, taught at Barnard College for twelve years, and served as a Visiting Lecturer in the Department of Sociology at Harvard. In 1969, Fox joined the sociology faculty of the University of Pennsylvania where she served as the Annenberg Professor of the Social Sciences.
Collection Summary
Interview transcripts and memos, field notes, correspondence, subject files, reprints, and newspaper clippings documenting multiple ethnographical medical sociology research projects conducted by Judith Swazey and Renée Fox, working independently and jointly under the auspices of the Acadia Institute which primarily focused on social, ethical, and policy issues in biomedical research and healthcare.
Series 1 contains research files created by Drs. Swazey and Fox over the course of various research projects. The Ethnography of Organ Transplantation and Artificial Organs subseries makes up the bulk of Series 1 and is comprised of ethnographic and related primary source materials collected by Fox and Swazey on the development and clinical introduction of organ transplantation (renal, cardiac, and liver) and artificial vital organs (dialysis and artificial hearts) from 1951-1987. These materials include interviews with physicians, nurses, and technicians as well as field notes of Swazey and Fox's observations while on rounds with physcians at major transplantation and dialysis centers in the United States. The interviews and field notes address a range of topics, including the development of transplant and dialysis therapies in practice, the emotional trauma of these therapies, patient selection, support systems, patients' quality-of-life, and end-of-life choices. Series 1 also includes records of Swazey and Fox's cross-cultural studies (e.g. the People's Republic of China and Majuro, Marshall Islands). Subseries 1 contains one file of interviews and field notes collected by Fox tracking the emergence of clinical research in Belgium post WWII with a focus on the pivotal role that American academic medical centers played in training European clinical investigators.
Also of particular interest is the Series 1 Chlorpromazine and Psychopharmacology subseries, which is comprised of primary source materials that Swazey collected in France and the U.S. relating to the development and introduction of chlorpromazine, the first "major tranquilizer or neuroleptic with anti-schizophrenic efficacy." Series 1, Biomedical Research Innovation Opportunities subseries contains interviews that Swazey and Stanley J. Reiser conducted between 1966-1967 with leading figures in biomedical research and health care, such as NIH Director James Shannon. Swazey and Reiser carried out this research for the Harvard University Program on Technology and Society and focused on what the informants saw as major research and therapeutic innovation avenues in the next several decades and the sorts of social, ethical, and policy issues those opportunities might generate.
Series 2 is comprised of field notes, correspondence, and primary source materials from Swazey and Fox's medical sociology research and teaching journeys to the People's Republic of China in 1981 (Fox), 1981 (Fox and Swazey), and 1985 (Fox). These materials, in part, focus on China's shift into advanced medical technology and tertiary care, cancer research, and the reconstitution of the medical and nursing professions after the Cultural Revolution.
Series 3 documents undergraduate and graduate courses on medical sociology and ethics that Swazey taught. The bulk of the series contains the syllabus, outlines, and weekly readings for a course on personhood titled "The Meaning of Person" which Swazey taught in 1984.
Abstract
Interview transcripts and memos, field notes, correspondence, subject files, reprints, and newspaper clippings documenting multiple ethnographical medical sociology research projects conducted by Judith Swazey and Renée Fox, working independently and jointly under the auspices of the Acadia Institute which primarily focused on social, ethical, and policy issues in biomedical research and healthcare.
Physical Location
Materials stored onsite. History of Medicine Division. National Library of Medicine
Provenance
Gift, Judith P. Swazey, 11/4/1992, Acc. #641b.
General
- Processed by
- Megan O'Hern
- Encoded by
- Megan O'Hern
- Processing completed
- April 2019
Processing Information
The Acadia Institute Ethnographic and Medical Sociology Research Collection was rehoused from original containers into archival folders and boxes. In the course of final processing several categories of material were weeded from the original accession and discarded by the processing archivist: publication drafts and related materials and duplicate items.
- Amygdalin
- Anthropology, Cultural
- Artificial Organs
- Attention Deficit Disorder with Hyperactivity
- Bioethical Issues
- China
- Chlorpromazine
- Confidentiality
- Ethics, Medical
- Heart, Artificial
- History of Medicine
- Human Experimentation
- Kidneys, Artificial
- Massachusetts
- Medical Records
- Personhood
- Primary Health Care
- Privacy
- Psychopharmacology
- Quackery
- Renal Dialysis
- Sociology, Medical
- Transplants
Creator
- Acadia Institute (Organization)
Subject
- Fox, Renée C. (Renée Claire), 1928- (Person)
- Reiser, Stanley Joel (Person)
- Swazey, Judith P. (Person)
- Harvard University. Program on Science, Technology, and Public Policy (Organization)
- Title
- Finding Aid to the Acadia Institute Ethnographic and Medical Sociology Research Collection, 1966-1987
- Status
- Unverified Partial Draft
- Author
- Megan O'Hern
- Date
- April 2019
- Language of description
- English
- Script of description
- Code for undetermined script
- Language of description note
- Finding aid is written in English
- Edition statement
- 1.0
Collecting Area Details
Part of the Archives and Modern Manuscripts Collections Collecting Area
8600 Rockville Pike
Bldg 38/1E-21, MSC 3819
Bethesda MD 20894 US
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